Mommies Funding Research

Official July 2007 Quilt

2011-06-30T22:58:00.001-04:00

This is the item we have all been waiting for and it's been THREE YEARS in the making! This gorgeous quilt is made with squares that represent the July 2007 mommies who came together to create this auction, including two special squares that represent Sawyer and Hannah. The lucky winning bidder will get to take home this priceless piece of art. The quilt is machine quilted by Nicole and looks beautiful!

Minimum bid $50
Retail value is priceless
Proceeds to benefit Families of SMA and MPS Society (we'll make an exception for this one and have the winning bidder split the donation between the two charities)
Donation made by BBC July 2007 Mommies & quilted by Nicole D.

Tea Gift Set

2011-06-29T12:25:00.005-04:00

This lovely little set features 2 dainty and beautiful cups and saucers, the book A Quiet Cup of Tea signed by the author, a box of Charleston SC grown tea, and a bottle of Lowcountry Gold natural wildflower honey.

Cup #1 has a soft Violet pattern, is marked with a crown and "Bone China England".

Cup #2 has a delicate Lilly of the Valley pattern and is marked with a Sentry and "Sheltonian China English Bone China".

The book A Quiet Cup of Tea is signed by local author Perrin Conrad. It features a short story, some musings on tea, the history of tea in South Carolina, quotes and recipes. A charming read, perfect for a "real" quiet cup of tea.

American Classic Tea is grown here in Charleston SC on Wadmalaw Island and is the only tea grown in America. The Charleston Tea Plantation is environmentally responsible and uses no insecticides, no fungicides, no excess packaging (tags, strings, overwraps or staples) and has a clean fresh smooth flavor.

Lowcountry Gold 100% natural wildflower honey is harvested here in Summerville SC and as they say: "Don't fool with Mother Nature, keep it natural". Delicious!

Retail value $50

Proceeds to benefit Families of SMA

Donated by Celeana Wood, Perrin Conrad, and Monica Eberhardt

Rose Headband

2011-06-29T12:10:00.005-04:00

This is a beautiful handmade rose headband made with purple and pink chiffon on elastic.

Retail value $13
Proceeds to benefit MPS Society
Donation made by Liz Navin
See more products on Facebook and Etsy !

Princess Clippies

2011-06-29T11:57:00.003-04:00

Your little princess will love these clips that resemble three of her favorite princesses. The clippies are made with "no slip grip" on an alligator clip.

Retail value $18
Proceeds to benefit Families of SMA
Donation made by Liz Navin
See more products on Facebook and Etsy !

Aquage Gift Set

2011-06-29T10:44:00.001-04:00

Perfect for every hair type! this gift set includes Color Protecting Shampoo, Color Protecting Conditioner and Beyond Shine spray.

Color Protecting Shampoo - 12 oz, A breakthrough ultra-light micor-emulsion helps to protect and seal haircolor molecules and prevent fading. Nutrient rich botanicals nourish, strengthen and moisturize hair to restore healthy shine and naturally silky feeling.
Color Protecting Conditioner - 8 oz, A nourishing blend of the lightest moisturizers and healing sea botanicals penetrate to help lock-in hair color molecules and replenish precious moisture. Leaves hair silky feeling and combability and shine. Adds UVB sunscreen protection.
Beyond Shine spray - 5 oz, Improves ceramic flat iron performance. Dual action shine spray adds brillant gloss or silkens and polishes unruly or curly texture. An advanced ultra-light emolient formula delivers long-lasting, reflective sheen instantly as it prevents moisture loss. Also silkens and polishes unruly texture when used with a ceramic flat iron or blow dryer.

Retail value $50

Proceeds to benefit Families of SMA

Donated by Visage Salon 612 Long Point Rd Mt Pleasant SC 29464

Baby/Toddler Leggings

2011-06-29T10:30:00.005-04:00

Two pairs of girls baby leggings handmade from ladies socks. Baby leggings aren't just for babies! Toddlers love to wear them on their legs and/or arms. Please note that these items will not ship until the end of July.

Retail value $12
Proceeds to benefit MPS Society
Donation made by Angela

Necklace Trio

2011-06-29T01:02:00.004-04:00

This is a lovely trio of necklaces! Included are:

Silver square necklace from Chico's is 21" long with a 4" adjustable length chain. The square pendant is 1 1/4" with alternating shiny & buff squares.
Black glass bead 4 strand tiered necklace is a beautiful vintage piece. Length is 17" long with 3" of adjustment.
Shell necklace is 21" long with 3" of adjustable chain. The shell is 2 1/2" wide.

Retail value $50

Proceeds to benefit MPS Society

Donated by Jeanette Craparotta

Coral Bracelet

2011-06-29T00:54:00.003-04:00

Beautiful hand crafted natural coral bracelet. A unique piece of jewelery!

7 3/4" in length.

Retail value $20

Proceeds to benefit Families of SMA

Donated by Monica Eberhardt & Faith Spratlin

Glass and Agate Earrings

2011-06-28T21:46:00.004-04:00

Beautiful handmade earrings made with sterling silver french hooks. This unique design features multicolor flowers on clear Millefiori glass and orange spot agate dangles.

Retail value $15
Proceeds to benefit MPS Society
Donation made by Desiree

Glass and Opal Earrings

2011-06-28T21:43:00.004-04:00

Beautiful handmade earrings made with sterling silver french hooks. The delicate design features yellow flowers on green Millefiori glass and African yellow opal on these petite little dangles.

Retail value $15
Proceeds to benefit Families of SMA
Donation made by Desiree

Black Tourmeline Earrings

2011-06-28T21:42:00.002-04:00

Beautiful handmade earrings made with sterling silver french hooks. Beads include black tourmaline, ruby and cultured pearls.

Retail value $20
Proceeds to benefit MPS Society
Donation made by Desiree

Black Tourmeline Earrings

2011-06-28T21:36:00.006-04:00

Beautiful handmade earrings made with sterling silver french hooks. Beads include black tourmaline, ruby and cultured pearls.

Retail value $20
Proceeds to benefit Families of SMA
Donation made by Desiree

Savannah Gift Basket

2011-06-28T14:40:00.003-04:00

Take a tour of Savannah, Georgia without leaving your house! This package includes items from the best Savannah has to offer! 3/4 pound of the best, fresh pralines from Savannah Candy Kitchen, 3 oz of locally produced Tupelo Honey from the Savannah Bee Company and Paula Deen recipes for Southern Fried Chicken and The Lady's Cheesy Mac with a bottle of her House Seasoning to use in the recipes. Your basket includes:

Fresh Pralines from Savannah Candy Kitchen:
This picture of the pralines does not do them justice. I don't have them pictured because I will buy them fresh right before I send them out.

Tupelo Honey from Savannah Bee Company:
Honey perfection, Tupelo Honey is the gold standard by which all other honeys are measured. Two weeks every spring, White (Ogeche) Tupelo Trees bloom in the Southeastern swamps with fine sunburst-shaped flowers that glisten with nectar. Savannah Bee Company Tupelo Honey has buttery undertones and mellow, clean-finishing sweetness like a thick, slow-moving river of liquid sunshine. Tupelo Honey complements a variety of foods, but is so delicious, we like it best just with a spoon! KSA Kosher Certified.

Paula Deen Recipes and Seasoning:
With multiple television shows, countless cookbooks, a bi-monthly magazine, an ever-expanding product line and several Southern-style restaurants, Paula Deen's kitchen in Savannah, GA just keeps getting hotter, and hotter. Despite her success, however, Paula knows the meaning of good friends, good family, and of course- good food!

Retail value: about $25 (depends on exact cost of pralines)
Proceeds to benefit MPS Society
Donation made by Amy W.

Savannah Gift Basket

2011-06-28T14:36:00.005-04:00

Onyx Necklace

2011-06-28T14:27:00.005-04:00

A beautiful and unique handmade necklace made of black onyx, bone, and beans. Matching earrings are included. Made with sterling silver.

Retail value $35
Proceeds to benefit MPS Society
Donation made by "Jewelry by Linda"

Turquoise Necklace

2011-06-28T14:23:00.006-04:00

This is a beautiful handmade necklace of ceramic turquoise and wooden beads. Necklace is 20" long and comes with matching earrings. Made with sterling silver.

Retail value $35
Proceeds to benefit Families of SMA
Donation made by "Jewelry by Linda"

$50 Sephora Gift Card

2011-06-28T14:15:00.007-04:00

The Sephora Gift Card comes in a sleek, black, dual-mirrored compact embossed with the Sephora logo and can be redeemed in store, online, or through any of our catalogs. What's more, it doesn't expire, and both the balance and transaction history can be checked online or in any Sephora store.

Retail value $50
Proceeds to benefit Families of SMA
Donation made by the Slurpee Moms

$50 Sephora Gift Card

2011-06-28T14:15:00.006-04:00

Custom made tutu

2011-06-28T13:11:00.006-04:00

This tutu will come in your choice of up to three colors. It will be full unless otherwise agreed upon. All I need are two measurements from you to make this fit your perfect little one.

For available colors please see my blog.

Retail value $20
Proceeds to benefit MPS Society
Donation made by Melody of Tutus For Me

Dipes and Wipes case

2011-06-28T13:06:00.006-04:00

Please note that the case you are bidding on is in the flip flop fabric shown. It will be sewn to look like the other case pictured. The case you are bidding on has a flip flop design on the outside and a turquoise lining. A Velcro closure keeps everything safely inside. It's machine washable and great for on the go! I have fit 4 diapers, a travel wipes case, disposable changing pad, diaper rash cream, breast pads, and a few throw away baggies. This is a great way to keep all diaper essentials together and not squashed at the bottom of your diaper bag!

Retail value $20-$25
Proceeds to benefit Families of SMA
Donation made by Melody of Tutus For Me

Custom Owl Hat

2011-06-28T12:46:00.003-04:00

Beautiful handmade custom crocheted owl hat! This Hat is made using a durable, yet comfortable, acrylic yarn. After communication (for color and size choices) item will be shipped within 2 weeks.

Retail value $15
Proceeds to benefit MPS Society
Donation made by Stephanie at Sew Sew Knotty

Custom Owl Hat

2011-06-28T12:40:00.007-04:00

Beautiful handmade custom crocheted owl hat! This Hat is made using a durable, yet comfortable, acrylic yarn. After communication (for color and size choices) item will be shipped within 2 weeks.

Retail value $15
Proceeds to benefit Families of SMA
Donation made by Stephanie at Sew Sew Knotty

$25 iTunes Gift Card

2011-06-13T11:45:00.002-04:00

An iTunes Gift Card lets you shop for anything at the iTunes Store — 24 hours a day, 7 days a week. Shop for music, movies, TV shows, apps, audiobooks, and more.

Retail value $25
Proceeds to benefit MPS Society
Donation made by Rebecca

$25 iTunes Gift Card

2011-06-13T11:42:00.006-04:00

Custom Team Blanket

2011-06-11T01:09:00.002-04:00

Show your team spirit! Custom made team blanket made in your choice of team, fabric (cotton or fleece), backing (flannel, minky, or satin), edged with coordinating satin ribbon. Please include your preferred team with your bid so that we may notify you if your team is not available. Most NFL, MLB, NCAA, and NBA teams are available. Size varies depending on fabric yardage, but averages around 40" x 50". Please note that your fabric will be custom ordered at the close of the auction. Once fabric is in hand, blanket will be made in 1 to 2 weeks. The blanket in this picture is made from flannel, with a minky back, and a satin ribbon edge.

Retail value $40
Proceeds to benefit MPS Society
Donation made by Nicole

Custom Team Blanket

2011-06-11T01:08:00.002-04:00

Family Game Night!

2011-06-11T00:59:00.004-04:00

This is a two pack of games. "Catch the Match" is a twist on Memory. Instead of trying to remember where the matching card is, you are trying to find the two items that match on two cards. Everyone plays at the same time. Don't be surprised when you lose regularly! This game is ages 5 and up, and 2-8 players.

When the little ones are ready for something else, the adults can break out "FlapJacks and Sasquatches." A humorous card game for ages 8 and up and up to 8 players, this is a great game for a casual gathering. You are attempting to harvest lumber while your opponents seek to interfere by sicing Sasquatches, environmentalists and dull axes on you!

Retail value $26
Proceeds to benefit MPS Society
Donation made by Dawn

Family Game Night!

2011-06-11T00:50:00.004-04:00

This is a two pack of games. "Slamwich" is a" Parent's Choice" card game. The action is fast and similar to SlapJack. Recommended ages are 6 and up, but an experienced game player of 4 should be able to handle it just fine!

When the little ones are ready for something else, the adults can break out "FlapJacks and Sasquatches." A humorous card game for ages 8 and up and up to 8 players, this is a great game for a casual gathering. You are attempting to harvest lumber while your opponents seek to interfere by sicing Sasquatches, environmentalists and dull axes on you!

Retail value $27
Proceeds to benefit Families of SMA
Donation made by Dawn

One Hour Massage (Los Angeles)

2011-06-10T23:37:00.002-04:00

Massage is the most transformational and among the oldest of the healing arts. References to massage and its values go back to the beginnings of recorded history. The winning bidder gets a gift certificate for a ONE HOUR massage from The Massage Place. Visit the website to see the 9 locations near Los Angeles, CA.

Retail value $47
Proceeds to benefit MPS Society
Donation made by Marie Jensen

One Hour Massage (Los Angeles)

2011-06-10T23:32:00.006-04:00

Custom Embellished Picture Frame

2011-06-10T23:26:00.003-04:00

One 7x9, with 3x5 opening, wood picture frame carefully created just for you. I will work with you to select a theme, personalization, color scheme, etc. Or choose from one already completed in my shop. Please visit my Etsy shop to get an idea of my style before bidding, thank you!

Retail value $15
Proceeds to benefit MPS Society

Donation made by Amanda @ Something Sorta Crafty

Custom Hanging Monogram

2011-06-10T23:23:00.006-04:00

One 9" monogram letter carefully created just for you. I will work with you to select a theme, personalization, color scheme, etc. Or choose from one already completed in my shop. Please visit my Etsy shop to get an idea of my style before bidding, thank you!

Retail value $12
Proceeds to benefit Families of SMA

Donation made by Amanda @ Something Sorta Crafty

FullArmor Photograph

2011-06-10T23:13:00.002-04:00

Winning bidder gets your choice of one 8x10 photograph from FullArmor Photography. Any photo on this link is available!

Retail value $20
Proceeds to benefit MPS Society
Donation made by Renee Kurkin

FullArmor Photograph

2011-06-10T23:04:00.006-04:00

Winning bidder gets your choice of one 8x10 photograph from FullArmor Photography. Any photo on this link is available!

Retail value $20
Proceeds to benefit Families of SMA
Donation made by Renee Kurkin

Custom Pillowcases

2011-06-09T21:32:00.005-04:00

You are bidding on TWO custom pillow covers for 16 x 16 pillow inserts (pillow inserts not included) from Mouse House Creations. The winning bidder gets to pick fabric, piping or no piping, envelope back closure or hidden zipper, etc. I generally use designer fabrics for pillow covers, such as Amy Butler, Michael Miller, etc.

Visit the Mouse House Creations Etsy shop, Facebook Page, and blog for more pictures and ideas.

Retail value approximately $45
Proceeds to benefit MPS Society
Donation made by Hayley Crouse
Visit Mouse House Creations to see more cute items for sale!

Custom Made Dress

2011-06-09T20:10:00.010-04:00

Adorable custom made children's dress from Mouse House Creations (winning bidder gets to pick fabric, style, size, etc). It doesn't have to be one from my shop....I can make MANY styles. Picture is just a sample of one of the dresses, but is not necessarily the dress that the winner has to choose.

Visit the Mouse House Creations Etsy shop, Facebook Page, and blog for more pictures and ideas.

Retail value approximately $38
Proceeds to benefit Families of SMA
Donation made by Hayley Crouse
Visit Mouse House Creations to see more cute items for sale!

Earl Grey Fabric Snack Bags

2011-06-09T18:04:00.004-04:00

Let your child (or you) snack in style. These snack-sized, lined bags in adorable prints are easy for your little one to open and fun to use. They make lunch packing a treat! The added benefit to the environment and your budget by not wasting all those plastic bags is a bonus! Just think of the money you can save by using these clever bags over and over. This size bag is also perfect for inside messenger bags or purses to hold all those little odds and ends that always seem to be hiding when you need them.

This set of five bags from Earl Grey Designs includes 2 lemon, one black with white music notes, one blue/brown plaid and one guitar pattern. Each is lined with cotton and closes with velcro. Machine washable and dryer safe. Wash inside out if especially dirty. Approx. 5 ½ wide X 6 inches tall.

Retail Value $30
Proceeds to benefit MPS Society
Donation made by Nichole Clinedinst
See my other Earl Grey Designs items in the shop!

Hand Knit Custom Beanie

2011-06-09T17:57:00.006-04:00

Earl Grey Designs offers you a custom hand knit cabled beanie in the size and color of your choice. The winner of the auction will communicate with Earl Grey Designs to agree upon a color, size and fiber option. All of Earl Grey's hats are knit with only the softest, high quality fibers, merino wool, cashmere, alpaca, handspuns, etc, however, fiber allergies will be considered in fiber selection. Hat will be knit and shipped within two weeks of communication about specific preferences.

Retail Value $30
Proceeds to benefit Families of SMA
Donation made by Nichole Clinedinst
See my other newborn knit items in the shop!

Shakeology Sample Pack

2011-06-08T15:43:00.005-04:00

The healthiest meal of the day.
Want a simple way to transform your health? All it takes is one glass of Shakeology® a day. This ultra-premium nutritional health shake contains the world's most powerful superfoods. It's the perfect combination of antioxidants, phytonutrients, enzymes, prebiotics, protein and many rare ingredients – including adaptogens, camu-camu, and sacha inchi – giving you the essential nutrients you can't get from an ordinary diet.

Replace one meal a day with Chocolate or Greenberry Shakeology to increase your energy, reduce cravings, lose weight, improve digestion and regularity, and transform your health. It tastes great, and it's just 140 calories (chocolate is 150). Shakeology also makes a great snack for those not looking to lose weight. This sample pack includes 2 chocolate and 2 greenberry individual serving packets.

Retail Value $20
Proceeds to benefit MPS Society
Donation made by Sari
Learn more about Shakeology and other Beachbody products!

Shakeology Sample Pack

2011-06-08T15:22:00.006-04:00

The healthiest meal of the day.
Want a simple way to transform your health? All it takes is one glass of Shakeology® a day. This ultra-premium nutritional health shake contains the world's most powerful superfoods. It's the perfect combination of antioxidants, phytonutrients, enzymes, prebiotics, protein and many rare ingredients – including adaptogens, camu-camu, and sacha inchi – giving you the essential nutrients you can't get from an ordinary diet.

Replace one meal a day with Chocolate or Greenberry Shakeology to increase your energy, reduce cravings, lose weight, improve digestion and regularity, and transform your health. It tastes great, and it's just 140 calories (chocolate is 150). Shakeology also makes a great snack for those not looking to lose weight. This sample pack includes 2 chocolate and 2 greenberry individual serving packets.

Retail Value $20
Proceeds to benefit Families of SMA
Donation made by Sari
Learn more about Shakeology and other Beachbody products!

31 Gifts Backpack and Pouch

2011-06-08T14:24:00.006-04:00

This is a package from 31 Gifts. From flashy and sassy to reserved and elegant, our products are sure to wow you and your friends. You'll see we offer everything from bags to baskets to bibs! The two coordinating items in this package are:

Toddler Back Pack in print Mad for Madras

Mini Zipper Pouch in print Apple Blossom

Retail value $44.00
Proceeds to benefit Families of SMA
Donation made by Karin Doll
Click here to see the full 31 Gifts product line!

Scentsy Package

2011-06-08T14:14:00.005-04:00

This is a warmer and scent set from Scentsy! Scentsy is a safe, wickless alternative to scented candles. The decorative warmers are designed to melt scented wax with the heat of a light bulb instead of a traditional wick and flame. Here is what your set includes (all items shown in the picture):

Retro Chic Full Size Warmer
Warmer Stand
Lush Gardenia scent bar
Cinnamon Cider scent bar
Vanilla Suede scent bar

Retail value of the total package $50.00
Proceeds to benefit MPS Society
Donation made by Karin Doll
Check out Karin's Scentsy page to see all of her products!

$25 Scentsy Gift Certificate

2011-06-08T11:50:00.002-04:00

Spend your $25 on whatever you want from Scentsy! Scentsy is a safe, wickless alternative to scented candles. The decorative warmers are designed to melt scented wax with the heat of a light bulb instead of a traditional wick and flame. Choose your favorite scents (so many to choose from!) and enjoy the benefits of a scented candle without the safety risks of a burning candle.

Retail value $25
Proceeds to benefit MPS Society
Donation made by Stephanie Clark
Check out Stephanie's Scentsy page to see all of her products!

$25 Scentsy Gift Certificate

2011-06-08T11:43:00.004-04:00

Spend your $25 on whatever you want from Scentsy! Scentsy is a safe, wickless alternative to scented candles. The decorative warmers are designed to melt scented wax with the heat of a light bulb instead of a traditional wick and flame. Choose your favorite scents (so many to choose from!) and enjoy the benefits of a scented candle without the safety risks of a burning candle.

Retail value $25
Proceeds to benefit Families of SMA
Donation made by Stephanie Clark
Check out Stephanie's Scentsy page to see all of her products!

$50 Target Gift Card

2011-06-06T12:09:00.003-04:00

Shopping at Target? Why not put that money to good use by donating it here and recieving this $50 Target gift card in return?

Retail value $50
Proceeds to benefit MPS Society
Donation made by Faith Spratlin

$50 Target Gift Card

2011-06-06T12:08:00.004-04:00

Shopping at Target? Why not put that money to good use by donating it here and recieving this $50 Target gift card in return?

Retail value $50
Proceeds to benefit Families of SMA
Donation made by Faith Spratlin

Tote Bag ~ Designs by EliAnn

2011-06-06T12:01:00.003-04:00

One tote bag with choice of any design from designs by EliAnn (except Classic Puppy due to size issues). Our tote bags are considered a mini tote. They are a perfect size for a toddler to carry his/her treats, small toys, books etc for car rides, play dates etc. They are even a cute size for Mom to carry as a small purse. Our tote bags have cotton bodies with nylon handles and a cotton applique in one of our fun designs and are machine washable. Please check out our website to make your selection.

Retail value $10
Proceeds to benefit MPS Society
Donation made by Liz @ designs by EliAnn
www.designsbyeliann.com

T-Shirt ~ Designs by EliAnn

2011-06-06T11:58:00.004-04:00

One shirt with choice of any 1 design from designs by EliAnn. You choose the shirt style, size and design. We use American Apparel shirts which are 100% cotton and made in the USA. All of our designs come in fun and fashionable colors and fabrics. Please check out our website to make your selection. Bid on both EliAnn items and choose a coordinating t-shirt and tote!

Retail value $12
Proceeds to benefit Families of SMA
Donation made by Liz @ designs by EliAnn
www.designsbyeliann.com

Daisy Rae Photograph(s)

2011-06-06T09:55:00.008-04:00

The Item(s) up for auction: Your choice of photograph(s) from Daisy Rae Photography. You can choose 3 5x7s, 2 8x10s or 1 16x20.

Any photo listed on this Facebook Page or on www.daisyraephotos.com is available!

Retail value $40
Proceeds to benefit MPS Society
Donation made by Amy Nelson

Daisy Rae Photograph(s)

2011-06-06T09:40:00.009-04:00

$30 Amazon Kindle Gift Card

2011-06-04T15:03:00.003-04:00

Load up your kindle with a few books to read this summer. Don't have a Kindle or a Kindle app on your smart phone or other device? That's OK because this gift card can be used for other Amazon merchandise as well.

Details from Amazon: Gift Cards must be redeemed on www.amazon.com, or its affiliated website www.endless.com, toward the purchase of eligible products. Purchases are deducted from the Gift Card balance. Any unused balance will be placed in the recipient's Gift Card account when redeemed. If an order exceeds the amount of the Gift Card, the balance must be paid with a credit card or other available payment method. Amazon.com may provide Gift Card purchasers with information about the redemption status of Gift Cards that they purchase. To view Gift Card balances, visit "Your Account" on Amazon.com.

Retail Value $30
Proceeds to benefit MPS Society
Donation made by Kellie

$30 Amazon Kindle Gift Card

2011-06-04T14:56:00.007-04:00

Brown and Cream Twirly Skirt

2011-06-03T20:26:00.005-04:00

Grown-ups like to twirl too! This soft cotton skirt is perfect for a spring trip to the farmer's market or a summer picnic in the park.

Five tiers of solid brown and retro cream & pink butterfly print alternate down to the knee, finishing with a pretty cream lace at the hem. A forgiving elastic ruched waistband and hidden side pockets add to your comfort and convenience.

This skirt is custom made to fit your waist measurement and preferred skirt length!

You can see more pictures at www.bloomandbelle.etsy.com

Retail Value $30
Proceeds to benefit MPS Society
Donated by Aryn at Bloom & Belle

Custom Personalized Superhero Cape

2011-06-03T20:13:00.008-04:00

What child doesn't like to be a superhero? This custom personalized superhero cape will create just the right mood for all of your child's world-saving games.

The cape measures 20" from neck to hem, fits most kids sizes 2T-5T. Made from cotton fabric in the color of your choice and fully lined with a lighter shade of the same color. In the middle is a felt super-symbol with a glittery white star and the initial of your superhero. This cape also features a fabric button closure hand-painted with your chosen initial.

You can see more pictures and ideas at www.bloomandbelle.etsy.com

Retail Value $20
Proceeds to benefit Families of SMA
Donated by Aryn at Bloom & Belle

Auction Instructions

2009-04-28T19:31:00.017-04:00

If you are experiencing any trouble posting your bid, you can also email your bid information to mommiesfundingresearch@yahoo.com and we will post your bid for you. Just make sure you tell us what item you are bidding on. The bidding will take place in the comments for each individual item. When you bid, please adhere to the following rules.

1. You must bid with a name and the dollar amount of your bid. First name is fine if you don't want to post your whole name for everyone to see. Every item has a minimum bid of $10.

2. You must post with an email address. If you don't want to post your personal email address, please create a yahoo, hotmail, etc. account for the purposes of this auction. You MUST use this email address for all auction communications, because the winning bidder will only be contacted at the winning email address. This is to ensure that the item goes to the person who bid on it.

3. Please do not bid on an item unless you are willing to follow through with your bid.

4. No bids will be counted after midnight - 11:59pm to be exact (eastern standard time) on July 7th. When the auction is over, please check to see if you have won an item. All comments posted after this time will be deleted.

Example of a bid:
Mary
$20
mary@emailaddress.com

5. Any bid missing any of the above information will not count and will be deleted.

6. Your winning bid includes shipping within the United States ONLY. If you live in another country, you may still participate, but be prepared to pay the difference in shipping costs.

Still have a question? Please do not ask questions in the comments sections. Anything other than a bid will be deleted. Please email us with any questions, comments, or concerns.

Detailed instructions on how to submit your donation and receive your item will be posted near the end of the auction, but here is a general overview of what will happen.

When the auction ends you will have 48 hours to follow through and make your donation in the amount of your winning bid. You will receive an email from mommiesfundingresearch@yahoo.com confirming that you have won, listing the winning bid, and including detailed instructions on how to pay for your item. You must follow the specific donation instructions for each charity so that we receive proof that you have paid. The person with the item will wait for confirmation of payment from us (NOT the winner) and at that point, the two of you can make shipping arrangements. More details will be included in your email, but here is a brief overview of what to expect:

SMA payments will be made online through the Families of SMA website. There is a page specifically set up for our auction. Click here to see the donation page. You may also make a monetary donation using this page if you wish to make a contribution without bidding in the auction. Thank you to everyone who donates!

MPS payments will be made by credit card through Clair. MPS Society sent her a credit card machine for the purposes of this auction. PayPal is also accepted, but please submit payment as personal so that Clair is not charged a PayPal fee. If you submit it as payment for goods, you will have to cover the PayPal fees before your item is sent.

Shipping is the responsibility of the person donating the item, EXCEPT in the situation where the winning bidder lives outside the United States. The winning bidder will have to make arrangements with the shipper to pay for the difference. Questions about shipping on a specific item? Ask us.

Sawyer's Story

2009-04-23T19:10:00.008-04:00

Sawyer was born on 6/29/07 and diagnosed on 8/22/07 with Type I Spinal Muscular Atrophy (SMA). Type I SMA is also called Werdnig-Hoffmann Disease. SMA is the #1 genetic killer of children under age 2.

SMA is an autosomal recessive genetic disease. An individual with SMA has a missing or mutated gene (SMN1, or survival motor neuron 1) that produces a protein in the body called Survival Motor Neuron (SMN) protein. This protein deficiency has its most severe affect on motor neurons. Motor neurons are nerve cells in the spinal cord which send out nerve fibers to muscles throughout the body. Since SMN protein is critical to the survival and health of motor neurons, without this protein, nerve cells atrophy, shrink and eventually die, resulting in muscle weakness.

As a child with SMA grows, their bodies are doubly stressed, first by the decrease in motor neurons and then by the increased demands on the nerve and muscle cells as their bodies grow larger. The resulting muscle atrophy causes weakness that leads to loss of function; such as head control, leg and arm movement, swallowing, feeding, as well as additional compromise of the respiratory (breathing) system.

At the time of Sawyer's diagnosis we were told there was no treatment available and he would die before his 1st birthday. We refused to accept that in this day and age there was nothing to be done and Charles immediately searched for the latest techniques and research on this disease. Sadly, this is the reality for children facing this disease.

His efforts brought us to The University of Utah's Medical School and Dr. Kathryn Swoboda, a geneticist and researcher at Primary Children's Medical Center. After flying there to meet with Dr Swoboda, Sawyer was placed on medications (Valproic Acid & carnitine). The medications were not a cure, but were being given in the hope of improving the quality and length of his life. Sawyer was visited weekly by a nurse, physical therapist, and an occupational therapist. Sawyer required around the clock care. Our goal was to enjoy Sawyer's sweet smiles and laughs as much as we could every day. We wanted him to live comfortably and to feel well loved.

Despite his circumstances, Sawyer was a happy baby. He smiled constantly and loved attention! He was a true joy to be with! Sawyer went to heaven when he was 3 months old. He was in our arms, surrounded by love and passed peacefully into heaven. To learn more about Spinal Muscular Atrophy & the efforts to find a cure please visit the Families of SMA website.

There IS HOPE! Scientists feel they are very close to finding a cure!

Hannah's Story

2009-04-23T10:21:00.001-04:00

Hannah was diagnosed with MPS Type I on June 30, 2008- one week before her first birthday.

MPS is an acronym for a rare genetic disorder called mucopolysaccharidosis. Hannah's body was lacking an enzyme necessary to break down molecules called glycosaminoglycans - long chains of sugar carbohydrates in each of our cells that help build bone, cartilage, tendons, corneas, skin and connective tissue. Over time, these glycosaminoglycans collect in the cells, blood and connective tissues. The result is permanent, progressive cellular damage which affects appearance, physical abilities, organ and system functioning, and mental development.

There is no cure for MPS although there are some treatments that are proving helpful, if successful. The first is enzyme replacement therapy (ERT), where a synthetic form of the missing enzyme is given through an IV weekly. It is helpful in the physical aspect of the disease, but doesn't cross the blood/brain barrier so it doesn't help with the neurological breakdown that occurs with the disease.

The second treatment is a stem cell transplant. Since the enzyme is produced in white blood cells, a transplant of healthy, enzyme producing stem cells will produce enzyme producing white blood cells, which do cross the blood/brain barrier. We made the choice for Hannah to start enzyme replacement therapy as soon as possible and start the process for transplant. Hannah responded almost immediately to the ERT, her liver started shrinking and her facial features became softer. A stem cell donor match was found very quickly and Hannah started chemotherapy to prepare her body for transplant on August 25, 2008 and transplant day was September 4, 2008. Hannah did not respond to the first transplant and it was deemed unsuccessful in early November.

We made the difficult choice, again, for another transplant. She started chemotherapy again on November 10th and transplanted on November 15. Just a few days later Hannah went into respiratory arrest and 5 weeks later she passed away. The strong drugs necessary to break down her immune system prior to transplant were just to much for her little body and we had to make the difficult decision to let her go on December 27, 2008. She fought harder than anyone I've ever seen, and harder than anyone should have to. She was surrounded by loved ones throughout her life and as she passed. We are grateful for the time we had with her, we just wish he had more.

For more information please check out www.mpssociety.org